...than I think some kids are not getting the help or the early intervention that they need.

September 25, 2023 | 14m 23s

Having had a large tumor removed and diagnosed as having Type two Neurofibromatosis, this storyteller shares the issues and concerns she had with pregnancy and genetic diseases.

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STORYTELLER ATTRIBUTES

AGE:40 - 49

GENDER:Female

EDUCATION:More than a college degree

RACE/ETHNICITY:White

LOCATION (ZIP Code 1st digit):1xxxx

PERSPECTIVE:Patient,Caregiver

STORY TYPE

BODY PART(S):Blood, Heart and Circulation; Bones, Joints and Muscles; Brain and Nerves; Digestive System; Ear, Nose and Throat; Eyes and Vision

DISORDER OR CONDITION TYPE:Cancers; Brain and Nerves; Genetics/Birth Defects; Having multiple health conditions at the same time

TOPIC:Finding out a diagnosis; Being treated; Communicating with doctors and nurses; Supporting family members who are sick; Making decisions about the right health care or treatment for you; Describing how easy or hard it has been for you to get the health care you need; Making decisions about the right health care or treatment for a loved one

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