This storyteller shares their experience with navigating the health system as a mother to a child with a rare diagnosis and the importance of having support and asking questions.
A transcript for this story does not exist. If you're a researcher who is transcribing this story for research purposes, please email the transcription to us.
Share your own story to help others understand what it is like to live with health problems.
Wondering what it's like to be a patient partner in a clinical study? Here are some links to resources.
Copyright 2019 | PaTH Network
