I feel like my days often revolve around work and doctor's appointments.

December 19, 2023 | 17m 06s

This storyteller shares their experience with a chronic genetic health condition with symptoms of fatigue and cramping , while advocating for more treatment options and assessments be done in the health care system.

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STORYTELLER ATTRIBUTES
30 - 39
Female
More than a college degree
Hispanic, Latino, or Spanish origin White
0xxxx
Patient
STORY TYPE
Blood, Heart and Circulation; Immune System
Having multiple health conditions at the same time
Experiencing symptoms; Finding out a diagnosis; Being treated; Getting tests or advice for how to be healthier; Communicating with doctors and nurses; Making decisions about the right health care or treatment for you; Describing how easy or hard it has been for you to get the health care you need
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