Even with these new medications...there are very few kids with Dravet syndrome that are seizure free.

August 21, 2024 | 20m 37s

At six months her daughter experiences her first of many seizures, this storyteller shares her families healthcare journey to improve research and management of Dravet Syndrome.

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STORYTELLER ATTRIBUTES
40 - 49
Female
College graduate
White
3xxxx
Caregiver
STORY TYPE
Brain and Nerves; Making decisions about the right health care or treatment for loved one
Brain and Nerves; Having multiple health conditions at the same time
Experiencing symptoms; Finding out a diagnosis; Communicating with doctors and nurses; Supporting family members who are sick; Describing how easy or hard it has been for a loved to get the health care they need
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